This policy is effective as of September 5, 2015
When you share information about your real-life health experiences on Iodine, you help others understand their options. You also help us in our mission to build a powerful resource for medical research that we hope can help make health information and products safer and more effective for everyone, including you.
Your Shared Data may be shared with our Partners.
Private Data 
- For example
- Your name, your email address
Shared Data 
Shared Data is any information you provide on Iodine that’s not Private Data. This includes any demographic info or real-life experience that you choose to submit (such as your age, gender, medications, conditions, or drug ratings and reviews). If you don’t see a lock symbol  next to the field you’re completing, the information you enter is Shared Data. It’s shared publicly on Iodine to help other users. Also, unless you opt out, we share it with trusted Iodine partners, such as medical researchers and collaborators.
- For example
- Female, 61
- Takes lisinopril for high blood pressure.
- ‘I started having a dry cough after taking this medication, and I’m thinking about switching.’
We share statistics about our users publicly on Iodine and with trusted Iodine partners, such as medical researchers and collaborators.
- For example
- ‘53% of women aged 35-54 thought this medication was worth it.’
Control your privacy
- Don’t publicly share information that can be used to identify or contact you. For example, don’t write your name in a review about a medication.
- Share as much or as little about your experiences as you want. For example, you can post comments about a medication without sharing your age, gender, or medical conditions.
- Opt out of sharing Shared Data with trusted Iodine partners.
- Look next to the  any time you submit information to see your opt-out status.
What information we collect and how we use it
To help you understand and improve your health
- By email
- On the Iodine website
Information we collect
Information you give us
Information you give us when you use Iodine might include:
- Personally identifying information, such as your name or email address
- Demographic information, such as age and gender
- Health information, such as medications and conditions
- Other real-life experience information, such as comments about your health or medications or responses to our surveys
For example, if you create an Iodine Account, we’ll collect certain information that can be used to identify you, such as your name, email address and phone number. If you create an Iodine Account using your login credentials from one of your SNS Accounts, we’ll be able to access and collect your name and email address and other personally identifying information that your privacy settings on the SNS Account permit us to access.
If you provide it to us, we may also collect other information that is not considered personally identifying information because it cannot be used by itself to identify you, such as your gender, age or date of birth.
Information we collect automatically
Like most websites and apps, we automatically collect certain information about how visitors use our services. We do this with automated data collection tools such as server logs, analytics, cookies, and web beacons.
Through the Site: For example, when you use the Site, our server logs store your IP address, browser type, operating system, and the pages you visited on Iodine. Here’s another example: we put a cookie (a marker) on your browser so our website knows that you already completed a survey about a drug and doesn’t ask you to do it again. Cookies are stored on your hard drive. On the other hand, web beacons are usually embedded on webpages or in e-mails. Like server logs, web beacons can also tell us what pages you visited on the Site.
Through the Iodine Apps: When you use an Iodine App, we collect certain information that your mobile device sends when you use the Iodine App, like a device identifier, user settings and the operating system of your device, as well as information about your use of Iodine.
Location Information: We may also collect and store information about your location by converting your IP address into a rough geo-location or by accessing your mobile device’s GPS coordinates or coarse location if you enable location services on your device. If you do not want us to collect location information, you may disable that feature on your mobile device.
How we use information
We use the information we collect in order to:
- Understand how people use our services
- Make our Site and the Iodine more secure
- Provide you with our services
- Communicate with you
- Customize your experience
- Conduct research
- Improve and develop products and services
How we share information
“Private Data” is any personally identifying information we ask you for or automatically collect. This is information that’s so specific that one piece of information alone (such as your full name or email address, or the location of your computer) can be used to identify or contact you.
If we ask you for personally identifying information, you’ll see the . This lets you know that the information you are submitting is Private Data.
- Examples of Private Data we may ask you for: Your name or email address
- Example of Private Data we collect automatically: Your IP address (which can identify your computer’s location)
If you see the , the information you’re submitting is Private Data.
“Shared Data” is any information you provide that isn’t Private Data. If you don’t see the , the information you’re submitting is Shared Data.
Shared Data may include:
- Demographic information you give us, such as age and gender
- Health information you give us, such as medications and conditions
Your User Submissions are shared with everyone because you post them publicly on Iodine.
We also share Shared Data with trusted third parties (including academic and commercial organizations, collaborators, and customers) for specific purposes, such as medical research. We refer to these trusted third parties as our “Partners.” You can opt out of sharing your Shared Data with our Partners, but only if you submit that Shared Data via the Site. You cannot opt-out of sharing your Shared Data with our Partners if you submit that Shared Data via an Iodine App.
Even if you have an Iodine Account, your opt-out is not associated with a particular login or user account. Therefore, if you opt out via the Site, we’ll track your opt-out choice by placing a cookie on your device that will tell us that you have opted out. If you delete the Iodine cookie from your device, please remember that you’ll have to opt out again on Iodine to opt out of sharing any new Shared Data that you submit after deleting the cookie. You can hover over the  on the Site to check your opt-out status.
While using Iodine, you might share multiple pieces of real-life information that could identify you, if combined. It’s also possible to include personally identifying information in free-text fields this information will still be treated as Shared Data, so be careful. It’s your choice whether to provide Shared Data and what to include when you post publicly.
If you don’t see the , the information you’re submitting is Shared Data.
Shared Data includes anything you post publicly on Iodine.
We share Shared Data with trusted Iodine partners unless you opt out.
“Statistical Data” is information we combine and analyze on an aggregated basis. It doesn’t identify individuals.
- Example: “34% of patients ages 30-39 experienced nausea from this medication.”
We may also share it publicly on Iodine and with our Partners for industry research and analysis, demographic profiling, and other similar purposes.
Our service providers
We may share information with third party companies and individuals that provide services to us, such as database management and web analytics.
These third-party services providers may have access to your Private Data, but only for the purpose of performing services on our behalf, and they are expressly obligated not to disclose or use your Private Data for any other purpose.
For our protection and the protection of others
We may share information (including Private Data) with government, law enforcement, or private parties if we believe it’s necessary or appropriate:
- To detect and prevent activity that we consider illegal, fraudulent or unethical
- To protect the property, rights and safety of us, our users, or the public in general
- To respond to claims, law enforcement requests and subpoenas (we’ll notify you about this if we’re allowed to)
In the event of a business trans
Your privacy choices
- Choose what information you give us.
- Choose what information you share publicly on Iodine.
- Choose whether to share your individual, real-life experiences (which may be shared publicly on Iodine or with trusted Partners).
- Opt out of sharing your Shared Data with our Partners.
The security of your information
We take reasonable measures to protect the information that we collect from or about you (including your Private Data) from unauthorized access, use, or disclosure.
For example, our employees may not access Private Data unless they need it to do a specific job, and they’re subject to strict confidentiality rules.
We also use Secure Sockets Layer (SSL) encryption on Iodine. Please be aware, however, that no method of transmitting information over the Internet or storing information is completely secure, so we can’t guarantee the absolute security of any information.
Modifying your information
Please note that in general, once submitted, your User Content can’t be deleted. In particular, your User Submissions can’t be deleted and will continue to appear on Iodine.
If you have an Iodine Account, you may be able to modify or remove certain User Content that you submitted via your Iodine Account.
If you don’t have an Iodine Account, and you want to remove some of your User Content from Iodine, please email us at firstname.lastname@example.org. We may request further information from you to verify that you are the user who submitted the User Content in question. We’ll consider your request on an individual basis, and we may (but are not obligated to) take steps to delete your User Content. Even you delete or we take steps at your request to delete specific User Content, some of your User Content may remain in archived/backup copies for our records or as otherwise required by law, and as we indicated above, your User Content will continue to exist on the Services. We’re not responsible or liable for the removal or deletion of (or the failure to remove or delete) any of your User Content.
In general, we can’t delete User Content. If you have an Iodine Account, you may be able to modify some User Content. We’ll consider removal requests, but we’re not obligated to remove User Content.
You can choose to unsubscribe from any email from Iodine via the link provided in the email.
You can opt-out of all communications from Iodine by sending an e-mail to email@example.com or by calling (415) 935-3463.
Links to other sites
Opt out of sharing certain information with medical research partners
Sharing your real-life experiences on Iodine helps build a powerful resource for medical research. It can make health products safer and more effective for everyone, including you. That’s why we share our users’ Shared Data with trusted Partners (including academic and commercial research organizations) for specific purposes, such as medical research.
Here’s an example of the kind of Shared Data we might share with our Partners:
Female, 61. Takes lisinopril for high blood pressure. ‘I started having a dry cough after taking this medication, and I’m thinking about switching.’ (We’ll never share personally-identifying information, like your name or email address, with Partners without your permission.)
You can choose to opt out of sharing certain Shared Data with our Partners. This only applies to the Shared Data that you submit via the Site. It does not apply to Shared Data you submit via an Iodine App. If you choose to opt out via the Site, we’ll put a cookie (marker) on your browser so that we know not to share any future Shared Data you submit via the Site with our Partners.
Opt out of sharing your Shared Data to:
- Stop sharing with our Partners. (You can still share on Iodine with other users.)
- Stop sharing from now on. (Information you submitted before opting out may still be shared with our Partners.)
- Stop sharing individual information only. (You can still be included in Statistical Data we share with our Partners, for example “75% of users thought Drug X was effective”.)
Remember: Since we track your opt-out with a cookie, if you delete your cookies you’ll need to opt out again via the Site. You can look next to the  on the Site any time to check your opt-out status.
Your Shared Data may be shared with our Partners.